I am sitting here counting my blessings, when I looked up Mestanon and this blog of mine popped up. Since my last Post I have had a hip operation that left me unable to feel much from my knee down. Slowly the feeling is comming back. It's been a year since the operation and I hope in the next year my foot will be functional, time can only tell. My Myasthenia Gravis has\d gone into chemical remission and I thought I was cured . Unfortunately that really was not the case. I am taking Mestanon again and trying to figure out how to avoid the negative effects of it.

I have since joined an LEMC and am really glad I have my MC brothers' support.

I am back to work after a 10 month disability and I am grateful that I had insurance because we would have tanked under the bills. That 10 months gave me time to think about how lucky I really am. I also appreciate my job much better now than ever before. I guess I was really bored out of my skull during the time off recovering.

When i was 19 I think I really realized what I thought love really was. I was in love with a Canadian girl named Louise Boisclair. Beautiful young lady on the rebound from her French Canadian lover. i met her in Maine on Wells Beach. I was a sailor and home on leave. I went to visit her in Montreal on leave as well. It was really amazing. Then my ship went to Africa and the Middle East and I got a dear John letter it temporarily crushed me. My next love was Normajene lamb. A very beautiful red head. She had an amazing soul and I was too stupid to realize that I was really in love with her .... I treated her poorly and it's one of my major regrets in life. Not because I "didn't get the girl" but because I believe I deeply hurt her feelings which is very wrong. What's it that Churchill wrote ... "Youth is wasted on the young"! I have been married to the same woman for 31+ years now. It's been an up and down relationship more up than down. She's my best friend too and I do (on occasion) tell her she is.

What's my point? I think that we are put under so many pressures today. Normajene was a bit on the unpolished side. I was way too egotistical to accept that. What a moron I was! She taught me that one really needs to look at the inside of a person in order to appreciate them. Luckily I did with my best friend. Thank you Normajene, I am so sorry I was a jerk! I am not asking for anything from you and wish you nothing but the best in life!

Today @ 10 am my Blood Sugar was 140. The prendazone is scaring the hell out of me. But I feel much better!

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I decided to create a Blog Journal. I'm a 59 yo man who's contracted Myasthenia Gravis. MG(myasthenia Gravis) is a relatively rare autoimmune disease. It usually manifests itself with women in their 20's and thirties and men in their 50's to 70's. It presents itself with fatigue, droopy eyelids and double vision. That's the mild side. Worst case you can't stand up and can't breath without a ventilator. There is no cure, no one knows how you get it; but there are drugs to get it into chemical remission.

I am an engineer doing computer support. I ride with Rolling Thunder, which isn't a Motorcycle Club. We all ride motorcycles but primarily we do mostly Veteran activities, raise money for Veterans issues, and spread to the public POW, MIA and KIA issues and nag the government so we leave no one behind in these crazy wars we've had. I love riding motorcycles. I love interfacing with "real" Motorcycle Clubs because these men are real. You always know where you stand with them. No one should ever be afraid of these clubs ... as long as you show respect and strength. Respect is most important for all.

Back to the MG:

I discovered my symptoms as of April this year (2006). Doctors thought it was a stroke because my eye lids were droopy and I was slurring my words. They give you an MRI and if they can't find anything they tell you, you had a TIA (mini stroke). That wasn't true and a good doctor like mine will persue it. I was diagnosed in July about 3 weeks after I had the MRI. That's pretty phenominal considering it can take up to 2 or more years to diagnose in an old fart like me. My disease was mild but the medicine they give you Mestanon (Pridostigmine bromide) gives you the Hershey squirts lots of fun. After a while you build up a tolerance for it though. It's November now and the disease has progressed from mild to moderate. I am taking Imuran (which takes 9 to 10 months to show any effect. And Prendazone to give quicker relief while the Imuran is to start working.